In the halls of Waynesboro Area Middle School, 13-year-old Logan is known as a beacon of joy and kindness. Despite facing numerous challenges that include autism, dyspraxia, ADHD, and other developmental disabilities, Logan has continually demonstrated a resilience that inspires all who know him. He faces an additional, profound challenge – a rare, fatal genetic condition known as the AARS2 gene mutation.
Logan is one of just two individuals known to have survived past infancy with this condition. The majority of those diagnosed pass away before their first birthday. The condition is fatal, causing heart failure and necessitating a heart transplant, the only known treatment or cure. Logan is currently listed as priority 1A on the heart transplant list.
His medical journey took a serious turn in November when he began experiencing excessive vomiting, a symptom of heart failure. He underwent a series of treatments and procedures at Hershey Children’s Hospital and the Children’s Hospital of Philadelphia (CHOP). His condition deteriorated to such an extent that he had to be airlifted from Hershey to CHOP, where doctors implanted a left ventricular assist device (LVAD) to keep his heart functioning. This mechanical pump, powered by batteries during the day and plugged into a wall outlet at night, serves as a temporary measure until a new heart becomes available.
Despite the severity of his condition, Logan continues to radiate positivity. Though he is currently using a wheelchair and manages constant pain from nerve damage in his left leg, his cheerful demeanor remains undiminished.
Logan’s family and the community have been providing their support during these challenging times. Recently, a group of tractor pullers highlighted Logan’s situation at an event on May 27th, successfully raising funds and generating awareness.
Nevertheless, the cost of the transplant, as well as associated travel costs, presents a significant financial challenge. The family is hopeful for further support from the community and from kind strangers. Those who wish to help Logan in his fight can contribute to his cause by visiting his GoFundMe page here.
Logan’s story is a testament to courage, resilience, and hope in the face of great adversity. By sharing his journey and lending our support, we can help Logan in his ongoing battle and play a part in writing the next chapter of his extraordinary story.
Please consider supporting this young man by visiting the GoFundMe page and making a contribution.
